Patient Registries

For nearly 150 years, Hospital for Special Surgery has pushed the boundaries of medicine with breakthrough research that has led to new and better approaches to treating musculoskeletal disease. Specifically, patient registries help us examine the effects of disease and current treatments on patients over time, and provide a deeper understanding of the physical, emotional, and socio-economic realities for those with compromised mobility.

With your participation, we can gather and examine invaluable information that will allow clinicians to not only learn more about the impact of musculoskeletal disease and treatment across different populations, but also help our patients now and in the future.

Learn more about how HSS improves outcomes through the use of our patient registries.

Current Registry Available for Online Enrollment

• ACL Reconstruction Registry

HSS maintains personal health information in a safe, secure and confidential environment. No one may gain access to participant and/or scientific data without authorized consent.

A List of Current Registries of HSS Patients

The following is a complete list of current registries at HSS. Currently, these registries represent an enrollment of over 84,000 patients.

• HSS Hip Joint Replacement Registry
• HSS Knee Joint Replacement Registry
• HSS Shoulder Joint Replacement Registry
• Predictors of Pregnancy Outcomes in Systemic Lupus Erythematosus and Antiphospholipid Syndrome - a multicenter registry for which Special Surgery serves as the coordinating center

• A Prospective Registry to Evaluate Inpatient and Post-Hospital Outcomes in Patients with Hip Fractures
• A Prospective Registry to Study Presentation Clinical Course, Treatment Patterns and Outcomes in Patients with Systemic Lupus Erythematosus
• Acute Postoperative Pain Database (Acute POP)
• Autoimmune Disease Registry and Repository
• Barbara Volcker Center (BVC) Antiphospholipid Antibody (aPL) Database
• Basal Joint Arthritis Database
• Brachial Plexus Database
• Cartilage Repair Registry
• Center for Hip Pain and Preservation Outcomes Registry
• Center for Skeletal Dysplasia Clinical Research Registry
• Chronic Pain Registry
• CORR: The Collaborative Orthopaedic Replacement Registry
• Development of a  Prospective Database to Study the Non-Operative Treatment of Osteochondritis Dissecans of the Knee in Skeletally Immature Patients
• Development of a Prospective Database to Study the Non-Operative Treatment of Patellar Subluxation and Dislocation of the Knee in Skeletally Immature Patients
• Distal Radius Fracture Database
• Elbow Reconstruction and Repair Database
• Electromyographic Patterns of Shoulder Muscles: A Normative Database during Activities Derived from Current Outcomes Measurements
• Foot and Ankle Registry
• Fragile Bone Registry
• Hip Device Registry
• Hip Joint Preservation Registry
• Knee Device Registry
• National Registry for Injury, Surgical Treatment and Outcomes of Elite Athletes' Hand and Wrist Injury
• Normal, Healthy Runners for the Purpose of Comparison to Pathologic Individuals and Populations
• Osteolysis Tissue Registry and Repository
• Outcomes in Pediatric Fractures of the Medial Epicondyle: a Prospective Registry
• Outcomes of Treatment of Vertebral Body Compression Fractures with Surgical Vertebral Augmentation
• Prospective Analysis of Limb Lengthening and Reconstruction Outcomes.
• Prospective Registry  of Regional Anesthesia for Ambulatory Shoulder Surgery
• Physiatry Electronic Registry (PERk)
• Registry and DNA Repository for Genetic Mapping of Congenital Scoliosis
• Registry for Treatment of Muscle Injury with Ultrasound guided Injection of Platelet Rich Plasma in Elite Athletes
• Rheumatoid Arthritis Inflammatory Arthritis Center Registry
• Scleroderma Registry
• Scoliosis Research Center Registry
• Upper Extremity Disability Database